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Zac Dystonia recovery story

Posted on May 11, 2020June 8, 2020 by admin

As many of you know, Dystonia is an "incurable" neurological disorder. It's a debilitating condition that causes muscles to spasm uncontrollably. For nearly 2 years, from mid 2012 it left me housebound, only leaving to go to medical appointments or to make the short drive to drop the kids off…

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Clive A Reprieve from Oromandibular dystonia

Posted on August 24, 2019September 24, 2019 by admin

My name is Clive Dickinson, a 31-year old research scientist from England, currently working in California. I have never really had any serious health issues and my family has had no previous history of neurological problems. From an early age, I played cornet (like a trumpet) and this became a…

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Dystonia books

Joaquin Farias Limitless.
How your movements can heal your brain. An essay on the neurodynamics of dystonia.

Joaquin Farias Intertwined.
How to induce neuroplasticity.
A new approach to rehabilitating dystonias.

Joaquin Farias Rebellion of the body.

Joaquin Farias The biomechanics of guitar.

Tom Seaman Diagnosis Dystonia: Navigating the Journey.

Norman Doidge The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science.

Norman Doidge The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity.

Dystonia organizations

Dystonia Medical Research Foundation The DMRF is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families. dystonia-foundation.org

The Dystonia Society Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia. dystonia.org.uk

Dystonia Europe The Dystonia Europe Vision is better quality of lives for people living with Dystonia in Europe, while supporting the search for a cure. dystonia-europe.org

Dystonia Medical Research Foundation The DMRF is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families. dystonia.ie

DMRF Canada Our mission is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. dystoniacanada.org

Dystonia Network of Australia Providing a pathway to support, information, literature and community awareness for adults and children living with dystonia and their carers and health providers. dystonia.org.au

Dystonia forums / groups